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Dementia | The Addi and Cassi Fund - Niemann Pick Type C - Part 3

Sunday, October 24, 2021

University of Notre Dame Airs Video During Football Game Highlighting Rare Cholesterol Disease

September 8, 2009 by  
Filed under Videos

Thanks to the University of Notre Dame for highlighting the Parseghian Family’s fight against Niemann Pick Type C disease during the Notre Dame versus University of Nevada Reno football game.   They have a true commitment to helping fight not only Niemann Pick Type C but rare disease of all types. A number of people […]

Want to Avoid Alzheimer’s? Keep Cholesterol levels low a new Kaiser Permanente study reports

August 10, 2009 by  
Filed under Alzheimers

I have been saying this for close to two years now about cholesterol and dementia being linked but no one seems to listen.  Now a Kaiser Permanente study published in Dementia and Geriatric Cognitive Disorders has hits the news showing that what’s good for your heart is good for your brain.  Really?  I guess this […]

CNN Covers How California Health Care Budget Cuts Threaten Life of Little Girl Suffering From Deadly Cholesterol Disease

August 5, 2009 by  
Filed under Health Care Policy, Videos

Embedded video from CNN Video Here is a story on sweet little Jessica Leoni who suffers from the same disease as Addi and Cassi. Her health care is being threatened by California’s Health Care crisis. Here is the story from CNN. LOS ANGELES, California (CNN) — Anthony and Lisa Leoni have little time to worry […]

Mom Finds Experimental Drug for Twins’ Fatal Cholesterol Condition; FDA Approves Treatment Under Compassionate Use Program

April 20, 2009 by  
Filed under Videos

Good Morning America reports on the Food and Drug Administration’s approval of Addi and Cassi’s compassionate use Investigational New Drug Application to give them intravenous infusions of cyclodextrin, a non toxic sugar compound found in everyday food products. Cyclodextrin may have the ability to remove trapped cellular cholesterol from Addi and Cassi’s brain, liver and […]

Cyclodextrin Sugar Killing HIV AIDS? Who Would Have Imagined This?

April 1, 2009 by  
Filed under Cyclodextrin

Millions of children in Africa like Rosine are needlessly contracting HIV/AIDS when an inexpensive and non toxic sugar compound called Cyclodextrin (or HPBCD) kills the HIV/AIDS virus and could literally stop the spread of this horrible deadly disease from mother to child (not to mention adults!).  Now that the world is going to find out […]

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