Reno Helps Fight “Childhood Alzheimer’s”

Biggest Little Community In The World Supports Finding Cure

Reno, Nevada, may be known as the “Biggest Little City in the World,” but the City also has the title of the “Biggest Little Community in the World.”  Since our identical twin 4 year old twins, Addi and Cassi, received a devastating medical diagnosis of Niemann Pick Type C — otherwise known as “Childhood Alzheimer’s (featured on ABC’s Good Morning America) — we have received an outpouring of support from the Reno community to help us fight this fatal disease that robs children of their ability to walk, talk and eat. On May 10th, 2008, the Reno community came together for the “Moonlight Garden Gala – A Night Of Hope and Miracles” at the Downtown Reno Ballroom to help raise money for research into this devastating and mysterious brain disorder. Millions of American’s are facing Alzheimer’s disease and every 71 seconds someone in America develops the disease.  NPC children like Addi and Cassi may hold important clues to helping researchers understand brain disorders of all types.  No person, whether young or old, should face death of the mind before death of the body and treatments and cures need to be developed. Here are some of the amazing events that have taken place in recent weeks in Reno to help raise money and awareness of brain disorders and "Childhood Alzheimers."

• Claim Jumper Fundraiser: On April 24th, Claim Jumper hosted an evening to raise money for the Addi and Cassi Fund with 10% of all proceeds earned that evening going to the fund. Thanks to Cara Hamm for organizing the event — we raised $2,358.33!
• Sierra Strength and Speed: Joe Dibble, one of Nevada’s leading dietitians and nutritionists, donated 100% of the proceeds from “Wednesday’s Workout Evening” at the WB Baseball Softball Training Center.  Everyone worked up a sweat, including Addi and Cassi, and Joe and his volunteers helped raise $1,345.00!
• On Thursday, May 8, 2008, Bishop Manogue Catholic High School held a "Miracle Minute" to raise funds to aid in the research necessary to find a cure for Niemann Pick Type C.
• CureCaps party – Jennifer Dolder and her two children organized a CureCaps hat making party at their house – over 50 caps were made to help raise money for research

Thank you Reno for your support! Posted by Chris (Mom)

Sierra Strength & Speed Fundraiser

Please bring yourself, a friend, and/or a family member and join the staff of Sierra Strength and Speed for an "every-fitness-level" fund raiser to benefit the Addi and Cassi Fund. Participants will have fun moving and learning new ways to exercise, avoid injury, and stay fit.

For more Information and to RSVP, contact Joe Dibble:

• (775) 741-1237 or joe@sierrastrength.com

Editor’s Note: Since 2004, Sierra Strength & Speed fitness studio offers Northern Nevada’s best in personal training and nutrition. Their staff includes a Licensed Athletic Trainer and Registered Dietitian with experience working with children, teenagers, adult, and seniors of all abilities. Visit www.sierrastrength.com for more information.

2008 Gala Sponsors

Title Sponsor:

Platinum Sponsors:

2008 Sponsorship Registration

If you prefer, you can download the following form and send it to the Addi and Cassi fund:

To download a PDF version of the sponsorship information page:

• Click HERE
  

To purchase individual or group table tickets please click on the following:

2008 Boston Road Rally & Party

Some very dear friends of Addi and Cassi’s in the Boston area have volunteered to host a fun Road Rally and Party to benefit The Addi and Cassi Fund.
WHEN: May 18, 2008 @ 2:30pm
WHERE:  Starting in Lynnfield MA (suburb north of Boston)
TICKETS: Purchase your tickets online Here

About the Road Rally We’ve designed a fun and challenging road rally that starts in Lynnfield and ends in Andover. We will give you clues to help you navigate through beautiful New England roads and answer questions along the way—kind of like a scavenger hunt. There will be a party at the end of the route where you can share your experiences with your fellow rallyers. If you choose not to enter the rally, you can still join us for the awards party at the end.
Charitable Contribution We are suggesting a minimum charitable contribution of $100 per car, or $50 per person for the awards party, with all proceeds going directly to the APMRF – Addi and Cassi Fund. This fund is 100% directed by the Hempel Family with input from the Scientific Advisory Board at the Parseghian Foundation.  The focus is to provide incremental funding to existing research efforts and to fund accelerated research in NPC and test emerging and experimental therapies that can have very near term impact to saving Addi and Cassi and other NP-C children. Map of Start and End Locations: View Larger Map Please plan to arrive at the starting location (3 Glen Dr Lynnfield, MA) by 2:30pm. We’ll have a short drivers meeting, and the first car will leave at 3pm. Cars will leave at 1-minute intervals thereafter.
Rain Date: Since we moved the date to Sunday so that The Hempel’s can join us we are going to have this event rain or shine!
Your Hosts: Stephen and Andrea Gondert Joe and Susyn Lichtenberg Bob McGill

 

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