SeizureTracker – Great Tool For Tracking and Recording Seizures

This week I started using an online program called SeizureTracker. Over the past few months, Addi and Cassi have been having seizure episodes and we have been dosing them up and down on different medications. SeizureTracker was created by Rob and Lisa Moss, parents with a son named Evan who suffers from a severe seizure […]

University of Notre Dame Airs Video During Football Game Highlighting Rare Cholesterol Disease

Thanks to the University of Notre Dame for highlighting the Parseghian Family’s fight against Niemann Pick Type C disease during the Notre Dame versus University of Nevada Reno football game.   They have a true commitment to helping fight not only Niemann Pick Type C but rare disease of all types. A number of people […]