University of Notre Dame Airs Video During Football Game Highlighting Rare Cholesterol Disease

Thanks to the University of Notre Dame for highlighting the Parseghian Family’s fight against Niemann Pick Type C disease during the Notre Dame versus University of Nevada Reno football game.   They have a true commitment to helping fight not only Niemann Pick Type C but rare disease of all types.

A number of people in the Reno area who are big football fans and who are supporting our upcoming fundraising event for Addi and Cassi brought the video to our attention.  Thanks to the Parseghian Family for continuing to put themselves out in the public eye and for fighting for our all kids with this horrible cholesterol disease that causes dementia in children.

For those people who have never heard of Niemann Pick Type C (NPC), it is a rare disease that causes degeneration of many parts of the nervous system, and involves the storage of cholesterol and other fatty molecules throughout the body. Understanding what is going wrong in cells in NPC and how cholesterol is involved may well lead to treatments not only for NPC patients, but for other suffering from more common neurologic disorders like Epilepsy, Dystonia, Ataxia and Alzheimer’s disease.