American Heart Association Features Addi and Cassi’s Fatal Genetic Cholesterol Disorder

Thank you to the American Heart Association for featuring Addi and Cassi Hempel’s story and increasing awareness of Niemann Pick Type C, an ultra rare and fatal cellular cholesterol disease that is trying to steal our twins away from us. We hope that by reading our story, more people will understand the significance of the Niemann Pick Type C […]

Want to Avoid Alzheimer’s? Keep Cholesterol levels low a new Kaiser Permanente study reports

I have been saying this for close to two years now about cholesterol and dementia being linked but no one seems to listen.  Now a Kaiser Permanente study published in Dementia and Geriatric Cognitive Disorders has hits the news showing that what’s good for your heart is good for your brain.  Really?  I guess this […]

Hope, Faith and Love – Our Nations Robotic Heros!

We have returned from the National Chemical Genomics Center (NCGC) and are busy working on pushing forward new therapy ideas for Addi and Cassi and Niemann Pick Type C disease using state-of-the-art cheminformatics methods. The robotic equipment the NCGC has established for testing cells and profiling compounds for large collections of chemicals is incredible.  The […]

Thank You Blue Cross Insurance!

Today is our first post in our blog and it’s a very significant day in our lives. We want to thank Anthem Blue Cross Insurance Company from the bottom of our hearts for giving Addi and Cassi a chance at life. Blue Cross has approved Zavesca for both girls and we plan to start the […]