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Marc C. Patterson | The Addi and Cassi Fund - Niemann Pick Type C

Friday, July 30, 2021

Mom Finds Experimental Drug for Twins’ Fatal Cholesterol Condition; FDA Approves Treatment Under Compassionate Use Program

April 20, 2009 by  
Filed under Videos

Good Morning America reports on the Food and Drug Administration’s approval of Addi and Cassi’s compassionate use Investigational New Drug Application to give them intravenous infusions of cyclodextrin, a non toxic sugar compound found in everyday food products. Cyclodextrin may have the ability to remove trapped cellular cholesterol from Addi and Cassi’s brain, liver and […]

CBS Evening News Covers Dillon Papier’s and His Army’s Fight To Save His Life

March 4, 2009 by  
Filed under Videos