Thursday, April 18, 2024

SeizureTracker – Great Tool For Tracking and Recording Seizures

May 11, 2010 by  
Filed under Featured Stories

This week I started using an online program called SeizureTracker. Over the past few months, Addi and Cassi have been having seizure episodes and we have been dosing them up and down on different medications.

SeizureTracker was created by Rob and Lisa Moss, parents with a son named Evan who suffers from a severe seizure disorder called Tuberous Sclerosis (TSC). Their personal story is incredibly inspirational because the Moss family has turned their hardship and frustration in tracking Evan’s seizures into a web based program to help everyone afflicted with seizures.

The video about their journey with Evan won the American Academy of Neurology 2010 Neuro Film Festival award.  Please take a moment to watch this video as it’s one of the most compelling videos I have seen.

Seizure Tracker is very easy-to-use and has terrific graphs and reports.  The website even has printable logs enabling you can track seizures when you are on the go, at the hospital, or even when kids are in school.  Currently, I log Addi and Cassi’s seizures each day on paper and then sit down and do the data entry at the end of the week.  You can also access your account on any web enabled mobile phone and soon users will have the capability of recording rescue medication usage and daily notes through the mobile site.

Seizure Tracker also allows you to share epilepsy and seizure related data and trends with your doctor. I feel this is the biggest benefit of all of the SeizureTracker program. I must admit it was hard to enter in all the seizures and see the number tallying higher and higher.  But at the same time Seizure Tracker’s trend charts will allow us to make better decisions on medications for Addi and Cassi and to know if a seizure medicine is actually working or not.

Thank you to the Moss family for the amount of time an energy you have put into creating this website and program for all of us. You have made a difference in our daily lives. I hope and pray someday our twins can reach a seizure free state.


Comments

7 Responses to “SeizureTracker – Great Tool For Tracking and Recording Seizures”
  1. Stephany says:

    Furnishings – Aside from the classic wood home furniture, you may also get those made from wrought
    iron, pipe, or even cane. After hearing and reading great reviews on the products, I decided to try them for
    myself. You’ll find article directory websites which might be explicitly designed
    for local small business proprietors to speak about their offerings and
    services.

  2. Best post on this blog. Also look too for my website. Than you for visiting. Regards

  3. This posting on Seizure tracker is informative.I had never came across such an interesting post. Thank you for the effort.

  4. Kased Ali says:

    Easily, the article is actually topic on HTML I mean( html tools ) related issue. CommentLuv plugin also a best tool for wordpress.

    I want to thank the blogger very much not only for this post but also for his all previous efforts. 🙂
    Thanks guys.
    .-= Kased Ali´s last blog ..ASCII – EBCDIC Converter =-.

Speak Your Mind

Tell us what you're thinking...
and oh, if you want a pic to show with your comment, go get a gravatar!