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SOAR NPC Parents group | The Addi and Cassi Fund - Niemann Pick Type C

Tuesday, September 28, 2021

Ten Tips To Start Your Own Virtual BioTech To Find Treatments For Your Rare Disease

June 9, 2009 by  
Filed under Virtual BioTechs

Ever since we went public with Addi and Cassi’s cyclodextrin treatments, I have received countless emails asking me a number of questions.  How did I find the sugar compound "cyclodextrin?"  How did I manage to get the Food and Drug Administration to approve infusions of this new compound into Addi and Cassi?  As a parent […]