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Cyclodextrin Infusions | The Addi and Cassi Fund - Niemann Pick Type C

Monday, November 29, 2021

Addi and Cassi Preparing For Intravenous Cyclodextrin Treatment

March 22, 2009 by  
Filed under Cyclodextrin

With the FDA approval now in hand and mediports installed, we are working towards starting intravenous infusions of Hydroxy Propel Beta Cyclodextrin on Addi and Cassi.  We are currently capturing a full set of baseline testing on the twins (blood, urine and stool samples) for our doctors and researchers to study. Intravenous cyclodextrin treatments have never been attempted before to remove […]