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Alzheimers | The Addi and Cassi Fund - Niemann Pick Type C - Part 2

Sunday, September 26, 2021

Alzheimer’s Patients Presenilin 1 Gene Defect Causes A Lysosomal Storage Disorder

June 10, 2010 by  
Filed under Featured Stories

A research paper by Dr. Ralph Nixon, director of the Center of Excellence on Brain Aging and the Silberstein Alzheimer’s Institute at NYU Langone Medical Center, was published today in the journal Cell reporting that Alzheimer’s patients with genetic mutations in the presenilin 1 gene have disruptions in the cellular protein recycling process mechanisms in […]

American Heart Association Features Addi and Cassi’s Fatal Genetic Cholesterol Disorder

February 1, 2010 by  
Filed under Featured Stories

Thank you to the American Heart Association for featuring Addi and Cassi Hempel’s story and increasing awareness of Niemann Pick Type C, an ultra rare and fatal cellular cholesterol disease that is trying to steal our twins away from us. We hope that by reading our story, more people will understand the significance of the Niemann Pick Type C […]

Stem Cells For Dummies: The Controvery, Pros and Cons, Facts, Future Research

January 27, 2010 by  
Filed under Featured Stories, Stem Cells

Ok, I admit it. I am a Dummie!  Especially when it comes to Science!  I do hold a Bachelor of Arts in Political Science from Berkeley but it’s not exactly the type of “Science” degree you need when your children are dying from a rare cholesterol disease that causes dementia. All of a sudden topics […]

Extraordinary Measures Movie Is A National Healthcare Wake Up Call

January 13, 2010 by  
Filed under Featured Stories

Extraordinary Measures, a new movie centered on the efforts of John and Aileen Crowley to find a researcher who might help find a cure for their two children’s rare genetic disease (Pompe Disease), will hit theaters on January 22. I can’t wait to see this movie!  The trailer sounds eerily familiar as we are working around […]

Woman Born With Half Brain Gives Everyone Hope – Michelle Mack An Inspiration For All Suffering From Brain Disease

October 12, 2009 by  
Filed under Featured Stories

CNN is reporting tonight on Michelle Mack, a woman born with half her brain who is leading a normal life!  According to scientists, her brain has re-wired itself! This story took my breath away.  If someone can be born with half of a brain and live a normal life, then kids like Addi and Cassi […]

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