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Videos | The Addi and Cassi Fund - Niemann Pick Type C - Part 3

Monday, October 18, 2021

CBS Evening News Covers Dillon Papier’s and His Army’s Fight To Save His Life

March 4, 2009 by  
Filed under Videos

World Rare Disease Day 2009 Genes Video

February 2, 2009 by  
Filed under Rare Disease, Videos

I made this video for World Rare Disease Day 2008 to bring global attention to the fact that Rare Disease is not so rare — it can happen to anyone or any family. Although each Rare Disease affects a small number of people, taken all together rare diseases affect millions of people in the world. The Genes video focuses on genes, which we all have, and how any of us could have a genetic disorder.

Billy Martin Hires New Major League Baseball Bat Boy

November 20, 2008 by  
Filed under Videos

Kevin Eadie To Drag Bats For Joe DiMaggio, Ted Williams, Mickey Mantle & Babe Ruth
All-American bat boy Kevin Eadie, 15, was called up to the “Major Leagues” last week and has been selected by Billy Martin to drag bats for Joe DiMaggio, Babe Ruth and other former Major League baseball stars.  The young dugout batboy star formerly with the Peninsula Pilots of Hampton, Virginia, has made it to the big leagues, his ultimate dream.

If you love baseball, we hope that you will spend 4 minutes today watching our tribute video to this boy who loved baseball and send it along to others to help us raise awareness of Niemann Pick Type C, a fatal brain disorder often referred to as the “Childhood Alzheimer’s.”   

KRNV Channel 4 Shelby Sheehan Reports On Childhood Alzheimer’s and Addi and Cassi’s Fight For Life

October 14, 2008 by  
Filed under Videos


PET Neuroimaging of Addi and Cassi’s Brains at Children’s Hospital Michigan

August 4, 2008 by  
Filed under Videos

A Look Inside The Brain – Scans Of Twins, Addi and Cassi from Addi & Cassi Hempel on Vimeo.

A video of our trip to Detroit to visit Children’s Hospital Michigan to have PET neuroimaging brain scans done on our four year old identical twins, Addi and Cassi. These scans have not been done before on children with Niemann Pick Type C disease, also known as the “Childhood Alzheimer’s.” We hope these brain PET scans lead to new insights into neurological diseases of all types.

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