Thursday, June 1, 2023

Addi & Cassi Featured in an Incredible Wall Street Journal Story

November 15, 2013 by  
Filed under Featured Content, Featured Stories

Pulitzer prize winning journalist Amy Marcus spent 6 years following Addi & Cassi, their doctors, and the science community on our journey to find treatments.  In an unprecedented 10 chapter online e-book, the Wall Street Journal has published this remarkable story.

The story (without the amazing videos, audioclips) is featured on the front page of the print version today including an amazing 2 page spread in the center of section A.

What the Wall Street Journal has done with technology is also absolutely fantastic and unprecedented in so many ways.  The story is told with beautiful “images” that are actually moving videos.  This project was an amazing effort by literally dozens of dedicated people as the credits and footnotes clearly indicate.

We are so fortunate to have the support of so many scientists, doctors, families, the NIH, the FDA and our friends at Johnson & Johnson.  As the story so beautifully illustrates, the effort to bring treatments to all NPC patients is indeed an effort of our entire community working together.

We would like to especially thank Amy Marcus for her compassionate and compelling treatment of this complex subject.

Comments

9 Responses to “Addi & Cassi Featured in an Incredible Wall Street Journal Story”
  1. I am actually grateful to the owner of this website who has
    shared this enormous piece of writing at here.

  2. Hello there, You’ve done an incredible job.
    I will definitely digg it and personally suggest to my friends.

    I’m sure they’ll be benefited from this website.

  3. Wonderful items from you, man. I have be mindful your stuff previous to and
    you are just too fantastic. I actually like what you’ve obtained here, certainly like what you’re saying and the way wherein you are saying it.
    You’re making it enjoyable and you still care for to keep it sensible.
    I cant wait to learn far more from you. That is actually a great web site.

  4. What i do not understood is actually how you are no longer
    actually much more well-favored than you may be right now.
    You’re very intelligent. You recognize thus considerably in the case of this subject, produced me in my view imagine it from
    a lot of various angles. Its like women and men don’t seem to be fascinated except it
    is one thing to accomplish with Lady gaga!
    Your own stuffs excellent. All the time maintain it up!

Speak Your Mind

Tell us what you're thinking...
and oh, if you want a pic to show with your comment, go get a gravatar!