Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I just read today’s Wall Street Journal article and it moved me to tears. But I wanted to commend Chris for her amazing spirit. The picture accompanying the article expressed so much to me. That you are determined not only to fight for your girls, but also to enjoy them and bring joy to them.
I can’t wait to read the update to this story, that Addi and Cassi are thriving and that new hope has been found for all children suffering from this disease.
Chris, you are an inspiration to all parents!
I will PRAY that you will see immediate and complete recovery with Cyclodextrin. As an identical twin with a sister diagnosed with Primary Progressive Aphasia nearly 3 years ago, I feel a special “kinship” to you precious little ladies!
Hello “Hempel’s”, I hope this finds you in good health. I stumbled upon your website while surfing the interent this evening and just wanted to tell you What strong and loving people you are and your girl’s are just as precious as can be. I will keep you all in my thoughts and prayers. God bless you all and stay strong!
Kyla Hensley
Wishing you well. You are so brave!!
Hi – I’m a Mommy of twin girls as well and i could only imagine what you’re going through. i wish your girls the best and just hope a doctor finds a cure for your angels.