Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I hope and pray that Addi and Cassi have a healthy happy life, filled with joy and happiness! I wish that they find a cure to ensure that that is exactly what happens.
I was on Youtube to look for Melinda Doolittle and saw the link to your website on one of her video’s.
So very impressive … I feel so sad about what your family has to go through. Be blessed. May the love of God be upon you, may the peace of Jesus fill your hearts. Be blessed.
Irma.
My son suffered a serious head injury that led to seizures, studdering and light sensitivity. After a review of the medical literature we put him on high potency DHA/EPA, Agmatine and creatine. After 6 months of very little improvement we saw results in 4 days and a marked improvement in 6 weeks. Certainly not proof that the treatment was effective, however we feel the coincidence was improbable. As my son’s condition was a result of trauma the treatment may not be of benefit however I would urge you to look into agmatine and creatine as potential use in the medical literature.
My thoughts are with you.
I came across your blog today, and I watched the segment from The Drs. I’m so sorry for what your family is going through. Your girls will be in my thoughts and prayers. They are very beautiful, and blessed to have you as their parents. Happy Holidays!
Hey Girls,
I just wanted to let you know both you and your family are in our thoughts and prayers. Take care sweet girls!