Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
hI GUYS ITS ME AMANDA WHO CAME TO VISIT YOU WITH MY NANA I HOPE ADDI AND CASI GET BETTER I LOVE YOU GUYS HOPE TO SEE YOU AGAIN.
I was best friends with Kevin Eadie when were were in fouth grade. After attending his funeral today, I am dedicated to helping other kids with this life robbing disease. You two will allways be in my prayers after hearing of your story, and thank you very much for posting the video of Kevin Eadie on youtube.
Our thoughts and prayers will be with Addi, Cassi, and their family. We hope that a cure will be found soon!
natalie,josh
parents to Svetlana and Tatiana born 8-5-08
Thank you so much for sharing your daughters’ stories. My 3-month-old is currently waiting for her skin biopsy to grow out so she can be tested for NPC and Gaucher’s (she tested negative for NPA and NPB). There is so little information out there on this, and I truly appreciate those of you who are getting their stories out there for those of us just starting this path.
I am praying for a cure, my cousin Kevin Eadie was just lost to NPC on Wednesday, a little of a month before his 15th birthday. Many prayers and wishes are extended to your family and beautiful girls. I have a 3 1/2 year old daughter and all the wonderful pictures are such an amazing testiment to the love and goodwill that everyone has for you all.