Sunday, January 3, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Judy Fountain says:

    Just watched the special about the girls and want to tell you how great you were…..I loved seeing the girls on TV. Lets hope that some progress is being made not just for your little ones, but other children around the world. You are doing a wonderful job of raising awareness about this dreadful disease. Addi & Cassi are so lucky to have you as their parents.
    Love,
    Judy

  2. Sonia says:

    I applaud your effort and dedication to finding a cure, I would be doing the same. The segment I saw on ‘Doctors’ reminded me of the movie, “Lorenzo’s Oil”, I cried and was in awe of the effort it took the mother to find a cure. God Bless Your Family may He place His healing hands upon the girls and your hearts.
    With love and prayers,
    Sonia

  3. Marla says:

    It is such a shame that something like this can happen to two beautiful children. But with your strength and hope, something can be done about this.

    So my prayers are with you and your family!!!!

  4. Anita Patton says:

    Hugh and Chris, and sweet little angels, Addi & Cassi: The segment on “the Doctors” was incredibly beautiful and depicts exactly what your life is like in this illness, and the nightmare you are enduring in this desperate wish for the cure! I am so proud of your perseverance and your determination to find the answers!!!! Thanks for all that you do, and may your precious little stars shine brightly in all they do ~
    with my love, Anita Patton

  5. Angie Sohler says:

    Dear Sweet Little Girls,
    My family prays for yours at this very difficult time. No one can understand the challenges you face, nor the road you have been on, even the mother of another special needs child. We all have our own stories that are very personal to each of us, as yours is to you. Thank you for allowing us a glimpse into your lives and the opportunity to send my love, my prayers and my best thoughts for these beautiful little girls. I pray for your miracle to come swiftly and timely and for God’s love to envelop these precious girls as you fight the struggle of your lives.
    My best,
    Angie Sohler

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