Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I just watched your interview on The Dr.’s and you have two beautiful daughters. I just want to say that you and your family will be in my thoughts and prayers during this time. I pray blessings for you and your family and for support and strength each and every day to go through each day. I pray for strength for mom and dad as well as Addi and Cassi. I think what you are doing getting the word out about this illness is great and enlightening and I pray that the medicines, even though they are experimental, work. My sister dies from breast cancer in 2004 and they only gave her 6 months to a year. However, she chose to try an experimental drug and she lived another 3 1/2 years before going home to her Lord and Savior. Continue doing what you are doing and being positive for the girls. I commend you both for the strength that you do have and not seeing anger in you. Your love for your daughters is priceless and wonderful to see.
I just watched your family on The Doctors show today Sept 22 nd, 2008….I wanted to share with you something may help you..First thing is buy Vitamin E 400 I.U. softgells and give the girls one 3x’s daily..also buy Omega-3 fish oil 1000mg 2’x’s a day. This will slow down the build-up of bad cholesterol, which has been proven to work in some adult cases of these disease and perhaps stop it all together…the doctors do not tell you direct answers…with them it is a money game with the drup companies…the vitamin E and the omega-3 are all natural elements and they also slow down the aging process for adults…Please go out now and purchase these..Gods speed with you..your girls are such sweet angels…God blessed us with sharing their story with us today…thank you..Nancy
On Behalf of the ladies in Kappa Psi,
We are supporters of Cathryn and Corynne and on Oct. 5th we are holding a Charity event to help raise money for the Neiman Pick Diesease Type C and the Bouchards race to raise a million dollars!
After just watching The Dr’s. this morning it makes us realize that there is HOPE out there and that we chose the right Charity to fight for!
We will keep your beautiful little girls in our prayers and keep spreading awareness to help fight this disease!
Best Wishes and Smiles all around,
Kappa Psi of Beta Sigma Phi
Your family is beautiful. There will be a cure for your beautiful children. My family will pray for you.
With Love and Prayers
I just watched you on Tv and feel such compassion. Your daughters are beautiful. I lost a grandson to SMA which is somewhat similar as far as the genetic origin and degeneration and eventual loss of life. I know the love and committment you possess. I watched my brave daughter fight the battle and now she keeps Conner’s memory alive each day. She named her business Conner’s Place in honor of that precious child. You are both brave and worthy to called parents. That’s just the best job in the world. It takes special loving people to do it right.