Sunday, January 3, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Dear Hugh and Chris, you and the girls have been on our minds for months. Seeing the Good Morning America segment this morning was so touchingly personal. Please know our community supports your quest for an answer, and, hopefully, for a cure. Marsha and David.

  2. Danielle Eddy says:

    Hello, I’m praying for your kids. I’m hoping for a cure to be found. You are great parents. Keep going.

  3. Stan & Kathy Kirchgessner says:

    Our wish is that everyone in the world saw the Addi & Cassi segment on GMA today. Especially the medical community, as we feel that a cure is imminent. All our love, Aunt Kathy & Uncle Stan.

  4. Concerned Dad says:

    I just saw an ABC news clip about your children. PLEASE
    look into a treatment called UROPATHY. It has been proven to cure Cancer, AIDS etc. The reason the the American Medical Association won’t endorse it, is due to their lack of being able to capitalize on it and make BILLIONS of dollars.

    Here is a link to get you started:

    http://www.shirleys-wellness-cafe.com/urine.htm

    God Bless You and Your Beautiful Children!

  5. Sandra Pifer says:

    I saw your segment on GMA this morning. Hopefully this gets some awareness on this awful disease. We are very good friends of the LaVerdes in Florida that found out their only child had this disease the day after you got your diagnosis. Our thoughts are with your family and the other families whose children are suffering and whose friends don’t know what else to do but pray. Sandy

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