Tuesday, August 22, 2017

Walgreen’s Support Allows Our Twins with Niemann Pick Type C To Receive Cyclodextrin Treatments At Home

July 8, 2012 by  
Filed under Cyclodextrin

We are sorry for the lack of posts in recent months! Hugh and I have been extremely busy with rare disease initiatives for Solution Therapeutics, our virtual biotech, as well as helping the Global Genes Project with a number of community based rare disease projects. We would like to report that after three years of [...]

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Ten Tips To Start Your Own Virtual BioTech To Find Treatments For Your Rare Disease

June 9, 2009 by  
Filed under Virtual BioTechs

Ever since we went public with Addi and Cassi’s cyclodextrin treatments, I have received countless emails asking me a number of questions.  How did I find the sugar compound "cyclodextrin?"  How did I manage to get the Food and Drug Administration to approve infusions of this new compound into Addi and Cassi?  As a parent [...]

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