Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum

September 2, 2010 by Chris Hempel
Filed under Videos

During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings throughout September to raise awareness for all rare diseases, not simply the horrific disease called Niemann Pick Type C that my six year old identical twins suffer from. Today’s videos are some of the most heartwrenching videos I have ever watched. The […]

Tags: Argyria, Boy Beneath the Bandages, Children's Rare Disease Network, Epidermolysis Bullosa, Global Genes Project, Hallopeau–Siemens disease, Harlequin Ichthyosis, list rare skin conditions, Morgellons Disease, Neutrophilic Dermatosis, Niemann Pick Type C, Pepsi Refresh, Rare Disease Day video contest, Recessive dystrophic epidermolysis bullosa, skin, skin disorders and rashes, Sweets Syndrome, Sweets Syndrome or Neutrophilic Dermatosis, Urticaria, Vote 4 Hope, Vote4Hope Pepsi Refresh, Xeroderma-Pigmentosum

The Addi and Cassi Fund - Niemann Pick Type C

Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum

CNN – Dr. Sanjay Gupta Follows Addi & Cassi for 4 Years

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