Extra TV Renegade Doctors Show Covers FDA Approval of Addi and Cassi’s Cyclodextrin Infusions
June 12, 2009 by Chris Hempel
Filed under Videos
Renegade Doctors (Extra) Story about Addi & Cassi Hempel’s Infusions of Cyclodextrin from Addi & Cassi Hempel on Vimeo. Twins Addison and Cassidy Hempel are fighting a disease that steals their memory, but they’re only five years old. Now their mother Chris is on a crusade to stop Niemann-Pick Disease Type C, a disease similar […]
The Wall Street Journal Reports On FDA Approval of Addi and Cassi’s Cyclodextrin Treatment
June 5, 2009 by Chris Hempel
Filed under News
By AMY DOCKSER MARCUS April 3, 2009 A Mom Brokers Treatment for Her Twins’ Fatal Illness Bucking Scientific Convention, Ms. Hempel Gets Researchers From Different Fields to Share Data on Potential Therapy From the moment her twin daughters, Addison and Cassidy, were diagnosed with a fatal genetic disease in October 2007, Chris Hempel has been […]
Mom Finds Experimental Drug for Twins’ Fatal Cholesterol Condition; FDA Approves Treatment Under Compassionate Use Program
April 20, 2009 by Chris Hempel
Filed under Videos
Good Morning America reports on the Food and Drug Administration’s approval of Addi and Cassi’s compassionate use Investigational New Drug Application to give them intravenous infusions of cyclodextrin, a non toxic sugar compound found in everyday food products. Cyclodextrin may have the ability to remove trapped cellular cholesterol from Addi and Cassi’s brain, liver and […]
President Obama, Please Meet Addi and Cassi To Understand Why Your Jay Leno Joke Is No Laughing Matter
March 21, 2009 by Chris Hempel
Filed under Opinion, Rare Disease
President Obama’s Special Olympics joke on Jay Leno may not seem like a big deal to some Americans but for others the gaffe is disappointing. Our twins, Addi and Cassi, are afflicted with a rare and fatal cholesterol disease called Niemann Pick Type C and they are considered “special needs.” We have all made mistakes with words […]
Why Rare Diseases Will Help Us Solve Common Diseases
January 9, 2009 by Chris Hempel
Filed under Health Care Policy
The Key To The Closet Is The Key to the Kingdom: A Common Lesson of Rare Diseases How can understand more about the most common diseases that affect mankind. By looking at the rarest diseases. This story takes us back…… Nearly twenty centuries ago, the Roman poet Juvenal wrote in The Satires about “a rare […]
