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R.A.R.E. Project | The Addi and Cassi Fund - Niemann Pick Type C

Wednesday, December 1, 2021

Is Your Disease on the RARE List™ – If So, More Bad News!

February 6, 2012 by  
Filed under Featured Stories

I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last week, the Global Genes Project, leading patient advocacy organizations representing the rare disease community, issued the RARE List™, a stunning 65 page alphabetical listing of roughly 7,000 known rare diseases and disorders. Did you […]