How Cyclodextrin Solution Is Made For Addi and Cassi’s Intravenous Cyclodextrin Therapy

A number of people from around the world who have children diagnosed with the fatal cholesterol disease called Niemann Pick Type C  have asked me how our we prepare our cyclodextrin solution for Addi and Cassi’s bi-weekly IV infusions of the compound. All hydroxy propel beta cyclodextrin (HPBCD) is not the same. It’s very important […]

Does XMRV Use Cholesterol to Survive in the Body Like HIV-AIDS? What XMRV Infected Twins May Teach us about the Virus.

You know the old saying, “trust your instincts?”  When you get a “gut feeling” about something, pay attention to it.  Ever since Addi and Cassi first became ill with a flu like virus in 2005, my motherly instincts kicked into overdrive. After months of being sick, I was told by Stanford doctors that Addi and […]

Nobel Prize Winning Cholesterol Researchers Brown and Goldstein Enter Cyclodextrin Field Of Study

I wonder how many smart cholesterol researchers have Google Alerts set up on Brown and Goldstein Labs?  If they do they might want to read this post about the Nobel Prize winning labs release of a very important cholesterol paper involving cyclodextrin and its modulation of cellular cholesterol metabolism. With their amazing new research work, […]

ResearchMatch.org Is Cool -The Idea, the Website and even the Logo! Is This Really From The NIH?

Great news from the NIH today — a new service called ResearchMatch.org was announced.  ResearchMatch.org is a national research study recruitment registry announced to help match volunteers with researchers who want them to participate in research studies. The registries matching model compliments Clinicaltrials.gov (a website that needs a serious facelift!) but  has one fundamental difference. […]

Woman Born With Half Brain Gives Everyone Hope – Michelle Mack An Inspiration For All Suffering From Brain Disease

CNN is reporting tonight on Michelle Mack, a woman born with half her brain who is leading a normal life!  According to scientists, her brain has re-wired itself! This story took my breath away.  If someone can be born with half of a brain and live a normal life, then kids like Addi and Cassi […]

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