Saturday, January 2, 2021

I am Green Beans and Ensure!

March 3, 2010 by  
Filed under NPC Family Stories

I am laughter until my belly hurts. I am strong, plus I have muscles. I am Illinois and Iowa. I am a brother with many parents. I am a sports fan. I am dogs and cats, horses and cows fan. I am green beans and Ensure. I am Happy Joe’s on a Friday night. I […]

Obama Cracks Jokes About Cholesterol Level And Personal Health – Is He Out of Touch?

March 2, 2010 by  
Filed under Featured Stories

I almost had a heart attack today (no pun intended) when I read that President Obama was joking about his cholesterol.  “I don’t want any lectures about my cholesterol,” he said, according to the pool report. If President Obama needs inspiration to cut his cholesterol and push away that fried chicken the next time he […]

Numbers Don’t Add Up – Only 347 New Drugs Approved By FDA For 30 Million Americans With Rare Disease in Past 25 Years?

February 6, 2010 by  
Filed under Featured Stories

When it comes to finding Rare Disease statistics, the same old statistics and facts keep popping up again and again. I realize data is difficult to gather on 7000 different rare diseases that afflict 30 million Americans but it’s frustrating that sports teams and Wall Street have more comprehensive statistics when millions of people across […]

The Road to Building a New Orphan Drug – Am I Mad?

February 4, 2010 by  
Filed under Cyclodextrin

On February 25-26, 2010, I will be attending the inaugural FDA Build-an-Orphan-Drug-Workshop hosted by the Center for Rare Disease Therapies at Keck Graduate Institute (KGI) in Claremont, Calif.  FDA agency experts will be on hand to provide guidance on applying for orphan drug designation. I will be attending the workshop with Dr. Ron Browne, hired […]

Stem Cells For Dummies: The Controvery, Pros and Cons, Facts, Future Research

January 27, 2010 by  
Filed under Featured Stories, Stem Cells

Ok, I admit it. I am a Dummie!  Especially when it comes to Science!  I do hold a Bachelor of Arts in Political Science from Berkeley but it’s not exactly the type of “Science” degree you need when your children are dying from a rare cholesterol disease that causes dementia. All of a sudden topics […]

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