Dare to Dream Video
First Lupas, then MS, then Cancer. Just Kidding – You Have Adult NPC!
February 8, 2008 by Chris Hempel
Filed under NPC Family Stories
Niemann Pick Type C is generally referred to as "Childhood Alzheimer’s" disease but apparently in rare cases there is adult onset NPC. Yesterday, I exchanged emails and phone calls with Jennifer Field, a 34 year old former nurse and happily married Mom with four beautiful children, who was diagnosed in November 2007 with NPC. This […]
Sweet Gabrielle LaVerde
January 7, 2008 by Chris Hempel
Filed under NPC Family Stories
An email popped into my inbox from my new friend, Danielle LaVerde, who has a sweet little girl named Gabrielle who has Niemann Pick Type C like Addi and Cassi. Danielle lives in Florida and like me she is doing everything possible to save Gabrielle from this horrible disease. Her letter makes me cry and […]
A Law Against Lawyers!
December 30, 2007 by Chris Hempel
Filed under Legal
I am posting this message to the entire world to let everyone know that Hugh and I will not sue any doctor, scientist, researcher, hospital or non-profit if anything happens to Addi and Cassi as we embark on trying experimental treatments to save them from Niemann Pick Type C disease. No matter what happens during […]
Hope, Faith and Love – Our Nations Robotic Heros!
December 7, 2007 by Chris Hempel
Filed under Genetic Testing
We have returned from the National Chemical Genomics Center (NCGC) and are busy working on pushing forward new therapy ideas for Addi and Cassi and Niemann Pick Type C disease using state-of-the-art cheminformatics methods. The robotic equipment the NCGC has established for testing cells and profiling compounds for large collections of chemicals is incredible. The […]
