Former American Idol Melinda Doolittle Sings “Be Blessed” To Help Kids With Deadly Dementia
May 10, 2008 by Chris Hempel
Filed under Videos
On May 10, 2008, we hosted our 1st annual benefit to cure Niemann Pick Type C. Over 1000 people attended the "The Moonlight Garden Gala" gala event held at the downtown Reno Ballroom. Supporters were treated to outstanding performances by former American Idol singer, Melinda Doolittle, and America’s Got Talent gifted ventriloquist, Terry Fator. Listen to Melinda Doolittle […]
Good Morning America Features Addi and Cassi’s Fight Against Fatal Brain Disease
May 1, 2008 by Chris Hempel
Filed under Videos
On May 1st, 2008, Addi and Cassi’s fight against Niemann Pick Type C was featured on ABC News Good Morning America. Please spend a few minutes to read the entire story and watch the 4 minute segment. We are very grateful to Good Morning America for taking the time to create this thoughtful and caring […]
Dementia In 4 Year Olds. Think about it.
April 2, 2008 by Chris Hempel
Filed under Alzheimers
Saving Our Brains We’re 4 year old identical twins, Addi and Cassi Hempel. We recently went on a trip to Detroit to Children’s Hospital Michigan with our Mom, Aunt and Grandma to have PET scans done on our brains. We are suffering from a rare and progressive neurological disease called Niemann Pick Type C. If […]
Re-Thinking Drug Development Roadmap In United States
March 21, 2008 by Daddy
Filed under Health Care Policy, Virtual BioTechs
No Insurance. No Money. No Drugs. No Hope. We Need A New RoadMap For The Future Of 7,000+ diseases that affect humankind, treatments for only 200 of these diseases are being actively pursued by pharmaceutical and biotechnology companies. With the cost of bringing a new drug to market now exceeding $1 billion dollars and taking […]
How Medical Decisions By Doctors Are Leaving Families In Financial Ruin
February 24, 2008 by Chris Hempel
Filed under NPC Family Stories
This is a medical story that is happening all over America – a story about doctors making medical decisions and not listening to patients (in this case an astute Mom). This is a story that is all too familiar to Niemann Pick Type C families — misdiagnosis for months or even years when symptoms seem […]
