Saturday, January 2, 2021

The “Real Curcumin” for Treating Alzheimer’s, Parkinson’s and Other Brain Diseases

September 28, 2008 by  
Filed under Products We Like

Verdure Sciences — Never heard of this company? Neither had I until I started trying to find a natural botanical compound called Curcumin to help treat Addi and Cassi, our identical twins who suffer from a fatal disease that mimics Alzheimer’s in young children. It’s called Niemann Pick Type C (NP-C) and I learned last […]

Dr. Phil’s “The Doctors” Show To Bring Childhood Alzheimer’s Into National Spotlight

September 15, 2008 by  
Filed under Addi and Cassi News

  On Monday, September 22nd, 2008, our family will featured on "The Doctor’s," a new Dr. Phil spin-off television show that is in its first season.  Addi and Cassi’s battle against Niemann Pick Type C, also known as the "Childhood Alzheimer’s" disease, will be discussed and we will appear as guests on the show.   Addi […]

Dementia At 7 Years Old

August 12, 2008 by  
Filed under NPC Family Stories

Ben Scott developed dementia at SEVEN One family reveals their truly heartbreaking story 04th August 2008 Like any proud dad, Andrew Scott loves to take pictures of his son, seven-year-old Ben. There’s Ben running around a field playing catch with his three sisters; Ben screaming with delight on the water ride at an adventure park; […]

PET Neuroimaging of Addi and Cassi’s Brains at Children’s Hospital Michigan

August 4, 2008 by  
Filed under Videos

A Look Inside The Brain – Scans Of Twins, Addi and Cassi from Addi & Cassi Hempel on Vimeo. A video of our trip to Detroit to visit Children’s Hospital Michigan to have PET neuroimaging brain scans done on our four year old identical twins, Addi and Cassi. These scans have not been done before […]

Coriell Institute: The Value of BioBanks To Further Medical Research

June 11, 2008 by  
Filed under Genetic Testing

I had never heard of the term “BioBank” or biorepository until my 4 year old identical twins, Addi and Cassi, were diagnosed with a fatal disease called Niemann Pick Type C, otherwise known as the “Childhood Alzheimer’s.” Since receiving this nightmare diagnosis, I have become familiar with many organizations I had no idea existed, including […]

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