Thursday, March 30, 2017

FDAs Orphan Drug Workshop Featured in Wall Street Journal – Push To Cure Rare Diseases

March 10, 2010 by  
Filed under Featured Stories

Below is a story that ran in today’s Wall Street Journal (Page A 3) on the FDA workshop I attended a few week ago at the Keck Graduate Institute in Claremont, CA.  We filed an orphan drug application for Cyclodextrin for the treatment of Niemann Pick Type C disease, an ultra rare cholesterol disease that [...]

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Social Security Disability ‘Compassionate Allowance’ – Only For Those Who are Impoverished?

March 5, 2010 by  
Filed under Health Care Policy

Today I called the Social Security Office in Nevada to find out about the compassionate allowance program for our twins. Last month, the Social Security Administration added 38 more conditions to the already 50 rare diseases and cancers designated for compassionate allowance, which provides expedited review of disability applications from people with severely disabling conditions. [...]

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Old Blue Eyes Returns To Reno – Frank Sinatra Stylist Singer Paul Salos To Perform To Find Cure For Childhood Alzheimer’s

August 4, 2009 by  
Filed under Fundraisers

Paul Salos, a Frank Sinatra stylist singer who made it through as a Top 10 contestant America’s Got Talent during the fall 2008 season will perform on October 3, 2009, at the Grand Sierra Resort in Reno, Nevada. Salos, who has been working as Frank Sinatra stylist for approximately 40 years, will join Nevada Entertainer [...]

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