What a great idea — a new website to showcase Rare Art created by Rare People to support Rare Disease awareness. The Kakkis Everylife Foundation has launched RareArtist.org for artists of all ages affected by a rare disease. There are almost 7,000 rare diseases that affect more than 25 million Americans — many of them [...]
Denim Blue Jeans Ribbon To Symbolize Rare Disease Awareness; New Campaign of Jeans and Genes A Perfect Fit!
The Rare Disease community now has a powerful and universal new symbol to rally around — a blue jeans denim ribbon created by the Global Genes Project and the Children’s Rare Disease Network. The worldwide initiative lauched today and is focused on raising awareness for millions of children living with rare and debilitating diseases like Addi and [...]