Wednesday, July 26, 2017

Extraordinary Measures Inspirational Quilt – Help Niemann Pick Type C Families Win 10K prize By Voting Today

January 16, 2010 by  
Filed under NPC Family Stories

Five families with children suffering from Niemann Pick Type C disease have posted their touching videos on the Extraordinary Measures Movie’s Inspirational Quilt. They are running a contest on the movie’s website and the winner of the video contest will win $10,000 to be donated the charity/foundation of choice. The chances of winning increases with [...]

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Extraordinary Measures Movie Is A National Healthcare Wake Up Call

January 13, 2010 by  
Filed under Featured Stories

Extraordinary Measures, a new movie centered on the efforts of John and Aileen Crowley to find a researcher who might help find a cure for their two children’s rare genetic disease (Pompe Disease), will hit theaters on January 22. I can’t wait to see this movie!¬† The trailer sounds eerily familiar as we are working¬†around [...]

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