Denim Blue Jeans Ribbon To Symbolize Rare Disease Awareness; New Campaign of Jeans and Genes A Perfect Fit!
February 1, 2010 by Chris Hempel
Filed under Rare Disease
The Rare Disease community now has a powerful and universal new symbol to rally around — a blue jeans denim ribbon created by the Global Genes Project and the Children’s Rare Disease Network. The worldwide initiative lauched today and is focused on raising awareness for millions of children living with rare and debilitating diseases like Addi and […]
Extraordinary Measures Movie Is A National Healthcare Wake Up Call
January 13, 2010 by Chris Hempel
Filed under Featured Stories
Extraordinary Measures, a new movie centered on the efforts of John and Aileen Crowley to find a researcher who might help find a cure for their two children’s rare genetic disease (Pompe Disease), will hit theaters on January 22. I can’t wait to see this movie! The trailer sounds eerily familiar as we are working around […]
Join Global Genes Project and Get Your Denim Ribbon To Support World Rare Disease Day 2010
January 3, 2010 by Chris Hempel
Filed under Featured Stories
World Rare Disease Day 2010 will be held on February 28. Please join the Global Genes Project to help raise awareness for Rare Diseases of all types by wearing denim on Feb. 28 or holding an event in your local area to raise money for your favorite Rare Disease charity (my party will be to […]
