Wednesday, April 26, 2017

Dr. Stephen Groft of NIH Visits Global Genes Project In Advance of Rare Disease Day 2011

February 24, 2011 by  
Filed under Featured Stories, Uncategorized

Monday, Feb. 28, is Rare Disease Day 2011.  Here is a great story from the Orange County Register, which is helping to raise awareness for rare diseases and our efforts to spread awareness through our blue denim jeans ribbon and “Wear That You Care” campaign. Local advocates looking to kick-start research to help patients with [...]

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It’s Time Dr. Francis Collins Be Named Director of The National Institutes of Health

June 3, 2009 by  
Filed under Opinion

News agencies over the past month have reported that Dr. Francis S. Collins, the scientist who led the U.S. government drive to map the 3 billion letters of the human genetic code, is the leading contender to run the National Institutes of Health.  Where is the announcement we are all desperately waiting for?  God, what [...]

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Cyclodextrin As A Therapeutic “Drug” For HIV AIDS, Niemann Pick Type C and other Viruses

April 16, 2009 by  
Filed under News

Addi and Cassi’s first round of cyclodextrin infusions have been going smoothly at Renown Regional Medical Center in Reno, Nevada.   We’re now into our third day of continuous infusions of hydroxy propel beta cyclodextrin (HPBCD) into the girls’ bloodstreams and they don’t seem to be experiencing any negative side effects.    I feel as if it’s [...]

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