NIH Announces Therapeutic Trial With Supplement N-Acetyl Cysteine (NAC) To Treat Fatal Children’s Cholesterol Disease
July 13, 2009 by Chris Hempel
Filed under NPC News, Research
You’ve got to LOVE supplements especially one called N-Acetyl Cysteine (NAC) when it can possibly help treat children afflicted with a rare and fatal cholesterol disease called Niemann Pick Type C (NPC). Considering there has only been only one clinical trial for Niemann Pick Type C ever conducted at the NIH (for a drug called […]
New non-drug fix for HIV?
June 30, 2009 by Chris Hempel
Filed under Cyclodextrin News, HIV-Aids
The Scientist Magazine By Alison McCook June 2009 Researchers are slowly establishing a connection between an extremely rare genetic disease and HIV — and homing in on a safe, non-prescription compound that could treat both. Recently, James Hildreth at the Meharry Medical College School of Medicine in Nashville, Tenn., and his colleagues found that cells […]
Ten Tips To Start Your Own Virtual BioTech To Find Treatments For Your Rare Disease
June 9, 2009 by Chris Hempel
Filed under Virtual BioTechs
Ever since we went public with Addi and Cassi’s cyclodextrin treatments, I have received countless emails asking me a number of questions. How did I find the sugar compound "cyclodextrin?" How did I manage to get the Food and Drug Administration to approve infusions of this new compound into Addi and Cassi? As a parent […]
Anthrax Bacteria Killed By Simple Sugar Compound Called Cyclodextrin. Is CDC Looking Into This?
June 9, 2009 by Chris Hempel
Filed under Cyclodextrin
We all remember the Anthrax-laced letters that killed five people and severely rattled the country post-9/11. Just when you thought there might not be a way to stop this lethal infectious disease along comes beta cyclodextrin, a non toxic sugar compound. A researcher by the name of Vladimir Karginov at a company called Innovative Biologics […]
Mom Finds Experimental Drug for Twins’ Fatal Cholesterol Condition; FDA Approves Treatment Under Compassionate Use Program
April 20, 2009 by Chris Hempel
Filed under Videos
Good Morning America reports on the Food and Drug Administration’s approval of Addi and Cassi’s compassionate use Investigational New Drug Application to give them intravenous infusions of cyclodextrin, a non toxic sugar compound found in everyday food products. Cyclodextrin may have the ability to remove trapped cellular cholesterol from Addi and Cassi’s brain, liver and […]
