Warning: Use of undefined constant ENABLE_CACHE - assumed 'ENABLE_CACHE' (this will throw an Error in a future version of PHP) in /home/customer/www/addiandcassi.com/public_html/wordpress/wp-config.php on line 41
Epidermolysis Bullosa | The Addi and Cassi Fund - Niemann Pick Type C

Thursday, December 2, 2021

Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum

September 2, 2010 by  
Filed under Videos

During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings throughout September to raise awareness for all rare diseases, not simply the horrific disease called Niemann Pick Type C that my six year old identical twins suffer from. Today’s videos are some of the most heartwrenching videos I have ever watched. The […]