Nothing Bundt Cakes for Nothing Bundt Beautiful Birthday Girls
January 26, 2010 by Chris Hempel
Filed under Featured Stories
Addi and Cassi turned six years old on Saturday. Over two years ago when the twins were diagnosed with Niemann Pick Type C disease, I was not sure they would still be with us today. Our little angels are amazing fighters and doing very well on their cyclodextrin infusions. Here is the ice cream cone […]
Family of Twins with Rare and Fatal Cholesterol Disease To Seek FDA Approval To Deliver Cyclodextrin Into the Brain
January 15, 2010 by Chris Hempel
Filed under Cyclodextrin, Cyclodextrin News
The tagline of the new movie, Extraordinary Measures, about John Crowley’s fight to save his children from the rare and fatal Pompe disease is….Don’t Hope For a Miracle – Make One! We are now working on making our own miracle – a new compassionate use investigational new drug (IND) protocol and application that we plan […]
Extraordinary Measures Movie Is A National Healthcare Wake Up Call
January 13, 2010 by Chris Hempel
Filed under Featured Stories
Extraordinary Measures, a new movie centered on the efforts of John and Aileen Crowley to find a researcher who might help find a cure for their two children’s rare genetic disease (Pompe Disease), will hit theaters on January 22. I can’t wait to see this movie! The trailer sounds eerily familiar as we are working around […]
Beware of Air Oxidized NAC Supplements – Pharmaceutical Grade N-Acetyl-Cycsteine (NAC) Boosts Glutathione Levels
November 22, 2009 by Chris Hempel
Filed under Featured Stories, Products We Like
Many papers have been published showing that people with diseases of all kinds might have problems with glutathione production in the body. In Addi and Cassi’s case, their fatal cellular cholesterol disease called Niemann Pick Type C is somehow disrupting their glutathione levels in their bodies. Over the past 9 months, we have been trying […]
Does XMRV Use Cholesterol to Survive in the Body Like HIV-AIDS? What XMRV Infected Twins May Teach us about the Virus.
November 21, 2009 by Chris Hempel
Filed under Featured Stories
You know the old saying, “trust your instincts?” When you get a “gut feeling” about something, pay attention to it. Ever since Addi and Cassi first became ill with a flu like virus in 2005, my motherly instincts kicked into overdrive. After months of being sick, I was told by Stanford doctors that Addi and […]
