Friday, August 1, 2014

FDA Filing Made Requesting Use of Medtronic SynchroMed Pump To Deliver Cyclodextrin To Brain

April 13, 2011 by  
Filed under Featured Stories

To say I am pumped up  today is an understatement!  We’ve reached another historic milestone in our effort to treat Addi and Cassi with cyclodextrin!  Dr. Caroline Hastings at Children’s Hospital Research Center Oakland filed a 400+ page document with the FDA yesterday on behalf of the twins seeking a permanent solution to deliver hydroxyl-propyl-beta-cyclodextrin [...]

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Cyclodextrins – Recipes To Make Edible Nanostructures and CD MOFs To LifeSaving Drug Treatments

September 6, 2010 by  
Filed under Cyclodextrin

Kenneth Chang of the New York Times reports on researchers creating edible nanostructures with gamma cyclodextrin which researchers are calling edible CD MOF (metal-organic frameworks). Of course, another amazing discovery with cyclodextrin that was found by accident! Potential applications with this gamma cyclodextrin (CD MOF) could include storing hydrogen in future fuel cells in cars. [...]

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Crossing The Blood Brain Barrier – Does Cyclodextrin Make Its Way Into The Brain?

May 2, 2009 by  
Filed under Cyclodextrin

Dr. David Begley, one of the world’s leading blood brain barrier experts at Kings College London is working on a research project we are currently funding on cyclodextrin and the blood brain barrier. We want to answer the following question. Does hydroxy propel beta cyclodextrin (HPBCD) cross the blood brain barrier? Since less than 5% [...]

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Indian Boy To Recieve Mesenchymal Intracranial Stem Cell Transplant

December 17, 2008 by  
Filed under NPC Family Stories

There is a brave little boy in India who is going to make history this week. His name is Aaditya (ah-dah-tee-ah) and right now this little boy is at BGS Global Hospital in Bangalore, India, being prepped for one of the first intracranial stem cell transplants ever conducted on children. The procedure was approved by the Indian government a [...]

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The “Real Curcumin” for Treating Alzheimer’s, Parkinson’s and Other Brain Diseases

September 28, 2008 by  
Filed under Products We Like

Verdure Sciences — Never heard of this company? Neither had I until I started trying to find a natural botanical compound called Curcumin to help treat Addi and Cassi, our identical twins who suffer from a fatal disease that mimics Alzheimer’s in young children. It’s called Niemann Pick Type C (NP-C) and I learned last [...]

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