Thursday, December 14, 2017

Dementia in Children and Teens – When Kids Brains Regress Like The Elderly

March 21, 2010 by  
Filed under Alzheimers, Featured Stories

The Alzheimer’s Society and Alzheimer’s Association have lots of information on caring for people with dementia but no resources on their website for people caring for children, teens and young adults suffering from dementia. There are many kids who have dementia as a result of rare diseases even though most people think dementia strikes the [...]

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World Rare Disease Day 2009 Genes Video

February 2, 2009 by  
Filed under Rare Disease, Videos

I made this video for World Rare Disease Day 2008 to bring global attention to the fact that Rare Disease is not so rare — it can happen to anyone or any family. Although each Rare Disease affects a small number of people, taken all together rare diseases affect millions of people in the world. [...]

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Indian Boy To Recieve Mesenchymal Intracranial Stem Cell Transplant

December 17, 2008 by  
Filed under NPC Family Stories

There is a brave little boy in India who is going to make history this week. His name is Aaditya (ah-dah-tee-ah) and right now this little boy is at BGS Global Hospital in Bangalore, India, being prepped for one of the first intracranial stem cell transplants ever conducted on children. The procedure was approved by the Indian government a [...]

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