Parents To Seek FDA Orphan Drug Designation For Cyclodextrin To Treat Rare and Fatal Cholesterol Disease
October 10, 2009 by Chris Hempel
Filed under Cyclodextrin, Cyclodextrin News
On Tuesday morning at 11am, Addi and Cassi are going to undergo volumetric CT scans of their livers and spleens. The tests are being conducted by doctors to determine if the cyclodextrin IV infusion treatment the twins are receiving under compassionate use INDs approved by the FDA are reducing the size of their enlarged cholesterol […]
Want to Avoid Alzheimer’s? Keep Cholesterol levels low a new Kaiser Permanente study reports
August 10, 2009 by Chris Hempel
Filed under Alzheimers
I have been saying this for close to two years now about cholesterol and dementia being linked but no one seems to listen. Now a Kaiser Permanente study published in Dementia and Geriatric Cognitive Disorders has hits the news showing that what’s good for your heart is good for your brain. Really? I guess this […]
What Dying Kids Can Teach Our Government About Health Care Reform
August 4, 2009 by Chris Hempel
Filed under Videos
Addi & Cassi Story II from Addi & Cassi Hempel on Vimeo. Here is a video we put together for Oprah last year about the issues we are facing with health care and drug development system in the United States and what happens when your children are dying from a rare and fatal cholesterol disease […]
Old Blue Eyes Returns To Reno – Frank Sinatra Stylist Singer Paul Salos To Perform To Find Cure For Childhood Alzheimer’s
August 4, 2009 by Chris Hempel
Filed under Fundraisers
Paul Salos, a Frank Sinatra stylist singer who made it through as a Top 10 contestant America’s Got Talent during the fall 2008 season will perform on October 3, 2009, at the Grand Sierra Resort in Reno, Nevada. Salos, who has been working as Frank Sinatra stylist for approximately 40 years, will join Nevada Entertainer […]
Kids Helping Kids: 5-year old Singing Sensation Kaitlyn Maher To Perform To Help 5-year old Twins Who Have Lost Their Voices From Dementia
July 30, 2009 by Chris Hempel
Filed under Featured Stories
Five year old singing sensation Kaitlyn Maher, who became the youngest person ever to make it into the Top 10 as a Finalist on NBC’s hit show, America’s Got Talent, will be coming to Reno, Nevada, October 3, 2009 to be the opening act at the Grand Sierra Resort benefiting the The Addi and Cassi […]
