Comments on: Sign and Circulate Jamie Heywood’s Declaration of Health Data Rights Petition Today http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/ Treatments & Cures for Niemann Pick Type C - Childhood Alzheimer's Sat, 19 May 2012 02:53:50 +0000 hourly 1 http://wordpress.org/?v=3.3 By: Beth @ Participating in Clinical Trials http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/comment-page-2/#comment-2840 Beth @ Participating in Clinical Trials Fri, 12 Aug 2011 04:18:15 +0000 http://addiandcassi.com/?p=2179#comment-2840 Great to have this kind of act of recognizing authority. I will support this Declaration of Health Data Rights Petition if I could. Great to have this kind of act of recognizing authority. I will support this Declaration of Health Data Rights Petition if I could.

]]> By: Helen@Custom Printed Balloons http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/comment-page-2/#comment-2835 Helen@Custom Printed Balloons Wed, 10 Aug 2011 22:31:06 +0000 http://addiandcassi.com/?p=2179#comment-2835 Indeed we will be concerned about our health privacy. i think that's what everyone's concern. .-= Helen@Custom Printed Balloons´s last blog ..<a href="http://www.customprintedballoons.org/pictures-of-balloons" rel="nofollow">A Sampling of Sites for Pictures of Balloons</a> =-. Indeed we will be concerned about our health privacy. i think that’s what everyone’s concern.
Helen@Custom Printed Balloons´s last blog ..A Sampling of Sites for Pictures of Balloons

]]> By: Marchelle Spacagna http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/comment-page-1/#comment-2834 Marchelle Spacagna Wed, 10 Aug 2011 14:59:05 +0000 http://addiandcassi.com/?p=2179#comment-2834 this is great info this is great info

]]> By: Kathrine@participating in clinical trials http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/comment-page-1/#comment-2816 Kathrine@participating in clinical trials Thu, 14 Jul 2011 10:26:14 +0000 http://addiandcassi.com/?p=2179#comment-2816 He is not trying to take away your rights to privacy, which wants to leave that intact. He's just trying to allow us to have the right to our own records and for us to share our own records, when, how, and if we want. If you have had a serious health problem in the long term, difficult, do not want that right. He is not trying to take away your rights to privacy, which wants to leave that intact. He’s just trying to allow us to have the right to our own records and for us to share our own records, when, how, and if we want. If you have had a serious health problem in the long term, difficult, do not want that right.

]]> By: lew poorman http://addiandcassi.com/sign-and-circulate-jamie-heywoods-declaration-of-health-data-rights-petition-today/comment-page-1/#comment-2592 lew poorman Tue, 21 Sep 2010 04:21:14 +0000 http://addiandcassi.com/?p=2179#comment-2592 BRAVO, Wow, 25 y ago my son was born with a diaph. hernia, 3 ops. 3 months at Childrens and we were sure we were alone, before the angels came (otrher parents some who had lost their boys) and helped us. I currently have several critical diagnosis. I get my healrth care from rthe VA. I have been fighting to get the docs (all I see) to give me a sheet witrh all diagnosis, meds, instructions, etc when I am in their office - i have to wait weeks for the frreedom of information act response. By then I forget. If its that hard with one major provider you folks must be going thru hell. You are in our prayers, Adam is now 25 and a management intern 8 blocks from Childrens. BRAVO, Wow, 25 y ago my son was born with a diaph. hernia, 3 ops. 3 months at Childrens and we were sure we were alone, before the angels came (otrher parents some who had lost their boys) and helped us.

I currently have several critical diagnosis. I get my healrth care from rthe VA. I have been fighting to get the docs (all I see) to give me a sheet witrh all diagnosis, meds, instructions, etc when I am in their office – i have to wait weeks for the frreedom of information act response. By then I forget. If its that hard with one major provider you folks must be going thru hell. You are in our prayers, Adam is now 25 and a management intern 8 blocks from Childrens.

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