Addi & Cassi Recieving Cyclodextrin Infusions
[nggallery id=7]
Comments
29 Responses to “Addi & Cassi Recieving Cyclodextrin Infusions”Speak Your Mind
Tell us what you're thinking...and oh, if you want a pic to show with your comment, go get a gravatar!
CNN – Dr. Sanjay Gupta Follows Addi & Cassi for 4 Years
Join our Mailing List!
-
Resources
- Actelion Pharma
- ALZForum.org
- Children’s Rare Disease Network
- CollabRx
- Coriell Institute
- FDA
- FDA Orphan Drugs
- Genetic Alliance
- Global Genes Project
- HeathDataRights.org
- Hide and Seek Foundation
- Human Genome Project
- Kakkis EveryLife Foundation
- KeepMemoryAlive.org
- Mayo Clinic
- Medpedia
- NCGC
- NHGRI
- Niemann Pick Foundation US
- NIH Clinical Trials
- NIH Office of Rare Diseases
- NORD
- OrphaNet
- Parseghian Foundation
- PatientsLikeMe.com
- PLoS
- PNAS
- PubMed
- Sloan-Kettering HerbGuide
- WikiGenetics
-
-
Blogroll
- 2008 Reno Gala Invitation
- 2008 Reno Gala Sponsors
- Acai Berry
- Acelora
- Actelion Pharma
- Addi and Cassi Fund
- Addi and Cassi’s Doctors
- ALZForum.org
- AmlaMax
- Apple Polyphenols
- Artichoke Extract
- Astaxanthin
- Baby Aspirin
- Barlean's Oils – All of them!
- Batten Disease – Phil Milto
- Bee Propolis
- Berry Complete
- Beta-Caryophyllene
- BioPQQ
- Blueberries
- Boston Road Rally
- Brazil Nut
- Carlson Labs Fish Oil
- Carnosine
- Children’s Rare Disease Network
- Cinnamon
- Claim Jumper Dinner
- CollabRx
- Common Questions
- CoQ10
- Coriell Institute
- Curcumin
- CureCaps Hat Project
- Debra Miller, CureDuchenne
- Dr. Caroline Hastings
- Dr. Denny Porter
- Dr. Marc Patterson
- Exercise Fundraiser
- Faces of NPC Kids
- FDA
- FDA Orphan Drugs
- Fisetin
- Funded Research Grants
- Garlic Extract
- Gaucher Type 3 – Carrie Ostrea
- Genetic Alliance
- Global Genes Project
- Grape Seed Extract – ActiVin
- HeathDataRights.org
- Hide and Seek Foundation
- Human Genome Project
- Juvenon
- Kakkis EveryLife Foundation
- KeepMemoryAlive.org
- Lipoceutical Glutathione
- Mayo Clinic
- Medpedia
- MegaKid Multivitamin
- Melatonin
- Milk Thistle
- Mushroom Matrix
- Myricetin
- NCGC
- NHGRI
- Niemann Pick Foundation US
- NIH Clinical Trials
- NIH Office of Rare Diseases
- NORD
- Nordic Naturals Pro/EFA
- NPC Background
- NPC Parents Forum
- NPC Researchers
- NPC Scientific Papers
- NSAIDS
- OrphaNet
- Our Story Of Hope
- Parseghian Foundation
- PatientsLikeMe.com
- PharmaNAC
- Pictures
- PLoS
- Plugins
- PNAS
- Proventigen
- PubMed
- Quercetin
- Red Rice Yeast
- Resveratrol
- ReThink Drug Development
- Riboflavin
- Royal Jelly
- Scentsualeyepillows
- Sloan-Kettering HerbGuide
- Soy Isoflavones
- Tammy Hodson – Down Syndrome
- Teavigo
- Top News Stories
- Vit E w/Tocotrienols
- Vitamin B
- Vitamin C – LivOn Labs
- Vitamin D3
- Ways You Can Help
- Web of Hope
- WikiGenetics
- Zero Cholesterol Recipes
-
Admin
Oh my angels! Save them…Dont let them so! Please…
Wonderful angels! Reading about them gives me hope
May God always protect these little angels.
Wish all these angels healthy and happy for all their lives.
Hello, I live in Calcutta, India. My daughter (SUKANYA) is 7+ and she’s a Niemann pick C type patient. She’s been taking Zavesca, Miglustate. But she took only 53 capsules in the last 2.5 months. I don’t have money to buy them any further. Could you please help me anyway? I am a very small businessman and I earn only 120 Dollars (approximately) a month. My only daughter is dying. I beg to all of you, please do something, save my daughter.
May God bless you all.
*** I am not fluent in English, please call my father (Mr.Dilip Banerjee) for any communication.
Contact number: +919062601283 (Grand father of Sukanya Banerjee)