Comments on: Parents To Seek FDA Orphan Drug Designation For Cyclodextrin To Treat Rare and Fatal Cholesterol Disease http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/ Treatments & Cures for Niemann Pick Type C - Childhood Alzheimer's Mon, 06 Feb 2012 20:01:32 +0000 hourly 1 http://wordpress.org/?v=3.3 By: abdominal pain http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/comment-page-3/#comment-3103 abdominal pain Thu, 05 Jan 2012 13:18:22 +0000 http://addiandcassi.com/?p=2216#comment-3103 FDA is a mess now..they are soo corrupted.i heard they approve drugs that not good for health :s FDA is a mess now..they are soo corrupted.i heard they approve drugs that not good for health :s

]]> By: deborah http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/comment-page-3/#comment-2388 deborah Sat, 14 Nov 2009 23:21:36 +0000 http://addiandcassi.com/?p=2216#comment-2388 Please read about the clinical trials for a drug that is on the market for a similar condition: http://www.nnpdf.org/npresearch_12.html Please read about the clinical trials for a drug that is on the market for a similar condition:

http://www.nnpdf.org/npresearch_12.html

]]> By: Anne http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/comment-page-2/#comment-2384 Anne Fri, 06 Nov 2009 22:36:06 +0000 http://addiandcassi.com/?p=2216#comment-2384 Blessings to you and your persistance! I hope you are able to get FDA clearance and find a pharmaceutical company to produce the solution. My prayers are with you and the girls. Anne Mainz, Germany Blessings to you and your persistance! I hope you are able to get FDA clearance and find a pharmaceutical company to produce the solution.

My prayers are with you and the girls.

Anne
Mainz, Germany

]]> By: elisabeth http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/comment-page-2/#comment-2377 elisabeth Mon, 26 Oct 2009 18:59:59 +0000 http://addiandcassi.com/?p=2216#comment-2377 It was great to read something so again. I was wondering for a long time how you and addi and cassi are doing. It is very positive to read that the cyclo is really doing something. In the netherlands my sons doctor is very sceptic about cyclo, but when i read your story, it still gives me hope. Thanks for all your hard work!! Elizabeth Riet (mother of Julius) It was great to read something so again. I was wondering for a long time how you and addi and cassi are doing. It is very positive to read that the cyclo is really doing something. In the netherlands my sons doctor is very sceptic about cyclo, but when i read your story, it still gives me hope. Thanks for all your hard work!!

Elizabeth Riet (mother of Julius)

]]> By: Janet Holmes http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/comment-page-2/#comment-2370 Janet Holmes Wed, 21 Oct 2009 16:30:27 +0000 http://addiandcassi.com/?p=2216#comment-2370 Hi Chris Just read your article and I hope that everything went well with Addi and Cassi. You are giving me hope again - thank you so much for everything you do. Janet Holmes Hi Chris

Just read your article and I hope that everything went well with Addi and Cassi.

You are giving me hope again – thank you so much for everything you do.

Janet Holmes

]]>