Wednesday, December 7, 2016

I am Green Beans and Ensure!

March 3, 2010 by  
Filed under NPC Family Stories

I am laughter until my belly hurts. I am strong, plus I have muscles. I am Illinois and Iowa. I am a brother with many parents. I am a sports fan. I am dogs and cats, horses and cows fan. I am green beans and Ensure. I am Happy Joe’s on a Friday night. I am one/fifth of a tribe. I am a guiding light. I am a force to be reckoned with. I am finding my place. I am independent. I am a handholder. I am OT. I am PT. I am one hospital stay away from owning my own wing. I am evolving, becoming. I am Niemann-Pick Type C.

Tylor Richardson is a teenager suffering from Niemann-Pick Type C (NPC) disease, a fatal and relentlessly progressive neurological condition that results from the inability to process cholesterol at the cellular level.

There are approximately 500 children in the world living with this rare disease that causes dementia yet research into the NPC cholesterol gene could lead to discoveries that could help millions.


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