“Wish Upon A Star” Today
Your support and encouragement helps us get through each day as we fight this battle against "Childhood Alzheimer’s. We started our "Million Wishes For A Cure" goal to beat Niemann Pick Type C and we need the world’s wishes and prayers to beat this fatal illness! Please make a wish for us today and circulate our message of hope for a cure.
December 8th, 2007 at 5:17 am
Dear Addi and Cassi
I’m mialing far from Japan. My five-year-old daughter Riko is also persevering with NP-C. Let’s fight against this disease together!
Winter is a dreadful season. Take care of an infectious disease, and reach a happy Christmas and the end of the year.
Bye!
Minoru Mizusawa (NP-C Dad to Riko)
December 6th, 2007 at 2:50 am
Hi Chris, my smart husband went online and forward the pictures of your twins. The only thing I am a pro at is judging infants and kids (NICU nurse) and those girls are way beyond stinking cute. How do you tell them apart? Some of the pictures look like: I’ll think it and you do it, but don’t tell anybody.
They look like a lot of fun and taking all those pictures will always give you great pleasure, as they so gave me a smile.
Take care,
Rhonda (NPC Mom to Graham)
December 4th, 2007 at 11:56 pm
I love you very, very much and pray that someday soon I can wrap my arms around you and give you a big hug. Stay strong!
All my love!
December 4th, 2007 at 8:50 pm
To My Sweet Peas:
While you read this, know that Aunti loves you. I pray and think of you both every day.
Aunti always knew there would be two of you; even before you were born. Mommy knows my thoughts.
Your Daddy called first thing to let us know you both were born and, as your Aunti, I was there to help you become strong and grow during your first year. I held you both with as much love as I could; helped bottle feed you; and held you close upon my chest for warmth, and to my heart, as well as humming the songs of childhood familiarlity; I wrapped you in warm blankets. I loved falling asleep in the “big chair” with the red afghan, just to stay put and make sure you were okay.
I have watched you both grow into terrific young girls, and your Aunti is grateful that you are in “my life.”
Knowlege is power. Your mommy and daddy are our heroes in the forefront of fighting this disease. We will continue the battle.
Aunti will send you more thoughts later.
Love you, Aunti Janet
December 4th, 2007 at 7:07 pm
Dear Addi and Cassi:
We have never met in person but we have followed your
development these past three plus years, thanks to your
very special Mom and Dad and Beverly Hempel who have
generously kept us informed with all those delightful
pictures!
Our thoughts and prayers are with each of you and
your Mom and Dad who have formulated a basis for the heartfelt wish that in the midst of their beautiful
efforts, the good Lord will find a way to not only spare your good health but rejuvenate you all in the
process.
Dean Hempel