Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I don’t even know you but I’ll wish upon a star for you. I wish for you both that your lives are filled with joy, love and laughter. Your parents are doing everything they possibly can to help you.
You are in my thoughts and prayers
Addi and Cassi, you are in our prayers and we pray there will be a cure in your lifetime and that God will ease you through this for whatever his purpose is.
Love,
Sherry and Fred Sibayan
I am sorry to hear about your girls diagnosis. I am happy that you are willing and strong enough and angry enough right now to be able to march on. Im exhausted. We didnt get a diagnosis until 2 years after Drew died. He was 1 month before his 11th birthday. He would be 21 this year. I have two more children and now a grandbaby. I work 70 hours a week and am attending classes in college so that I can find a way to help in my own way. I want our story out also. I would be willing to talk about anything that I know about NPC and our struggle. I dont want Drew to be forgotten. He changed our whole life and how we look at the world. I have emailed my mother who nits and crochets…hopefully, she will be able to help out with the caps. I cant promise anything.
Lots of love to the girls and what a wonderful web site.
Dona Guyer Barry mom to Kevin Andrew Henthorne Guyer 3-7-87 to 2-5-98.
Dear Chris and Hugh:
How are you holding up during this Christmas season? I wish for worldwide support in all ways to find a speedy cure for this disease. And I pray that some of the heavy burdens you are carrying be lessened with the support of family and friends over the holidays.
What a beautiful photo of your two lovely angels, Addi and Cassi! Give them a hug from me.
Do not give up hope… Miracles happen every day.
I look forward to seeing all of you in 2008 when I visit Denise.
Love and Healing
Suzanne West