Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.











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Thinking of the two you during this Easter Season. May GOD Bless your precious little souls. You two have been so strong and brave during all these years. May the sun shine upon your beautiful faces and may the LORD hear our prayers not only to give you strength but to find a cure. Your Mommy and Daddy are doing so much to find a cure for you and all the other little ones with rare disease.
Love and Bessings Auntie Bernie
Mr. Ramadan was clearly the wnnier. (/sarc)As I said at the time had Loudon Co. a larger Tea Party base this unqualified man who took the primary away from a seasoned local woman ( onewith a well-defined conservative history in Loudon) would never have gotten to first base. In fact, L.C. Tea Party members epressed their frustration in emails and in a comment or two left in this post..It doesn’t take much to fight back, but you do need SOME people willing to spend time on the drudgery of handing out leaflets, etc. In that post are links to fighters in the trenches – e.g., the indefatigble Mr. Faulknor at Blue Ridge Forum. Coincidentally, his top post at the moment concerns the infamous David Ramadan.As we all too sadly know, elections have consequences. Ramadan shouldn’t even BE in that seat.It is up to all of us to keep the local stables cleaned out. In Virginia, that’s not easy. It’s definitely an old boy network. And Grover Norquist is surely one of the old boys.BTW, *his* network is crumbling at the edges: due to Frank Gaffney’s courage and integrity, the anti-tax go-to-guy for Republicans, Grover, is losing his absolute hold on the Beltway GOP. After all that work, I sincerely hope Mr. Gaffney has a pleasant holiday season. He’s earned it.Most Tea Party meetings are postponed for the holidays. I hope everyone considers a New Year’s resolution to get involved. Putting my money where my mouth is, I’ve started a walking program so I’ll be at least well enough to attend a few meetings next year. I never could make myself “exercise” for the health of it. W/ fibro, exercise isn’ t so great. But I’ll be darned if I’m going to lie down and let them roll over me. They’ll have to do it while I’m standing up waving a Gadsden flag.Onward and upward, y’all.
Hope everyone in this world owns a happy family. Let us pray for those children and hope every dream came true. Fighting!