Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
i pray for you
i hope for you
i love you
i think you have great parents
i think you are great
i think every one should pray for you
reply if you pray for Cassi & Addi
Hi Addi and Cassi,
You have wonderful parents right beside you, they are strong. With their supports, you will win this fight against this mind robber. Look at Dominic, you can definitely do the same.
Wish you and your family all the best,
Hung, Pharm.D.
Cantho City, Vietnam .
Can I just ask if the girls have dental amalgam fillings? Also, how did they respond to their childhood vaccinations? Do they experience any other physical symptoms, such as stomach upset, chronic fatigue, muscle jerks and cramping?
Dear Addi & Cassi,
Both of you have given me a renewed hope.. I know what its like to be sick and be in & out of hospitals having had over 25 major corrective surgeries eversince my birth.. My doctors told my mom that I will not live past 10 years.. but here I am 33 years running! My mother never lost faith & hope.. she never gave up and Im sure your parents are the same.. Eventhough Im living with chronic renal failure and go for dilaysis thrice a week, I have a treatment tht I can rely on to survive.. I pray that you will soon have one as well.. May God break down the barriers & hurdles in your path to a normal life.
Withs lots of love, Dominic, (all the way from Chennai, India)
Dear Addi and Cassidy,
May the good lord bless you with a cure. Keep fighting and you are in my thoughts and my families prayers. We are fighting with you! You are so fortunate to have such a loving and wonderful family!
GodSpeed to you both!
Cassedy Stien