Saturday, January 2, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Debbie Earl says:

    Just wanted to send you a link to a certain drug I thought you might want to read.

    http://www.chicagotribune.com/topic/who-story-namenda-20110203,0,5096733.story

    It contains information about Namenda, an drug showed to help autistic symptoms, but is usually used for alzheimer patients.

    Hope your family is all doing well. Sending prayers your way.

    Sincerely, Debbie Earl

  2. gabi says:

    happy birthday addi cassi

  3. Peter White says:

    Hugh and Chris
    Thinking about you both and the girls. Wishing Cassi and Addi a Happy Birthday.
    Cassi, it’s about time you were mentioned first.
    Saw Nick last night and reminisced some fun times on Centre Island.
    Shane still wins the dog of decade.
    Hope we will see back this way. Bedrooms ready with a view of the Sound.
    Prayers and hugs from your old friends in the East.

  4. bailey smith says:

    hi addi and cassi would just like to say happy, happy birthday! i hope you have an amazing day! enjoy!
    lots of love from bailey

  5. bailey smith says:

    hi addi and cassi would just like to say happy, happy birthday! i hope you have an amazing day! enjoy!
    lots of love from bailey

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