Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
Thinking of you. Praying for you enjoyment of everyday.
From a Mom of a special needs child.
Brenda
cp: prettypumpkin
Hey Guys,
I just wanted to let you know that I hope you 2 adorable little girls are getting better every day. I have been praying for them!
Hi. I’m writing from Spain just to let you know there are quite a few people over here who are following your case very closely. We all admire your family so much! I wish there were more people like you in the world, ready to fight and share generously.
Today’s a very important day for you, but also for many other people all over the world whose hopes are exactly the same as yours. Wish you all the best and thank you once again for everything you’re doing on behalf of the Niemann Pick community.
Big hug for these two brave girls and their even braver parents.
Chris, I just read the latest about the cyclodextrin research on the FDA blog. Your work is tireless and never ending. What an amazing woman you are. I pray that your efforts will not be in vain. You and your girls are in my thoughts and prayers.
Teresa Seely
I was on Youtube Today and I was Watching Katiyn Mahers Videos when I can ACROSS a video that she mad for your Daughters Addi and Cassi.There was a link to this Website and I wanted to check it out..I Have Now heard your story and I want to do what I can to help.My Name is Paige and I am 14 Years old and I live in Texas. I cant do much But I want to do all I can..
It was so sad to see your struggles and we want to help in any way we can. How old are the girls now? What are they doing these days? Has the Cyclodextrin worked?
We are so impressed that you did all that research and fought the government policies, forcing things to open up so that smart parents like you have a chance to do EVERYTHING they can to help their children (and others!).
Take care
Leslie and Maya