Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
Addi & Cassi,
I work for a Lab which test for Niemann Pick Type C disease and that is how I came across one of the published articles on both of you. I just read up on Cylodextrin treatment that you both are receiving; hope this is it, this will be the cure!! I have to say I admire your mom’s effort in being so proactive in finding a cure. I would do the same for my daughter. My prayers are with you and your family.
Lots of love -Farhana
We just voted for Addi and Cassi’s story on the “Extrodinary Measures” quilt and will continue to do so every day (and spread the word to family and friends). Sending our love, support, and prayers from Texas to Nevada. We hope we can see you all soon.
Love, Margo, Jerry, and the kids
Thanks you guys! Prayers received and returned! Love you all!
Hi Chris,
I watched your family’s story in the show The Doctors, and I would just like to say that you are such an inspiring person. I truly hope that a miracle would come very soon for you and your kids. Addi and Cassi are so adorable and they couldn’t have had any better parents than you. Continue to stay strong, continue the fight, and I will always pray for you. God bless! 🙂
Hi Chris,
I met you at Dr. Shapiro’s office over the summer when my daughter was getting tested for allergies. I just wanted to say that both your daughters are very beautiful and I appreciate you keeping all of us posted about your journey to find a cure for your gorgeous daughters.You, Addi, and Cassi are in inspiration to all!
May GOD continue to hold your beautiful daughters close to him. They are wonderful little angels and you as their parents are truely AMAZING! Continue to educate yourself and stay positive. May GOD continue to give you the strength, wisdom, and LOVE. YOU ARE TRUELY AMAZING! ~Kaishea