Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
After reading http://addiandcassi.com/guestbook, I thought this might be a useful resource for your site:
http://www.biomedsearch.com
The site is free, and perhaps the most comprehensive biomedical site on the web. It has all PubMed and MedLine documents, plus mililons more including full-text journal articles and a large database of theses and dissertations.
And, you don’t have to register but if you do you can use portfolios to save documents, share documents (and comment on them) between users, and set up automatic alerts.
You have two incredibily beautiful little girls and they are complete troopers. I am sorry that this disease has caused them so much pain. Please know that my thoughts are with you and your family and I hope that they are doing well.
Addi and Cassi- you girls are beautiful and strong! Hang in there and don’t ever give up hope! I wish you all the best! You have to be the last two people on earth who deserve this- I wish you all the best!
Hi guys,
I am just watching you from Ireland, of all places! I just want to say, I do hope that this message finds you happy, in good form and hopeful about the future. And to your parents: What an amazing job you are doing. Keep it up, and may you find what you are looking for. My best wishes to you all!!
S
Hi girls, I’m also watching ye on the Doctors show in Ireland. Both of you are beautiful, happy girls and a joy to watch. I hope that a miracle happens and ye get to live a long healthy life. It must be heartbreaking to watch the 2 girls getting worse-I have a 2 yr old and if this were to happen to him I dont know how I’d cope. I wish ye all the best.